12th Annual PROMIS International Conference

We are happy to share invitation to the 12th Annual PROMIS International Conference [1], „Shaping Better Health Through Patient-Reported Insights: Utilizing PROMIS to Advance Care and Improve Health Systems” that takes place on 22-23 October 2026 in Prague, Czechia.

Program Highlights
  • Plenary 1: The Global Revolution: Transforming Health Systems Through PROMs.
  • Plenary 2: Operationalizing PROMIS for Meaningful Action: Advancing Systems, Clinics, and the Patient Experience.
  • Plenary 3: Real-World PROMs Action: Integrating Crosswalks, Interpretation, and AI for Better Care.
  • International Session: PROMIS Around the World – What’s New.
Learn. Share. Engage.
  • Pre-conference Workshops Plenary Sessions – Poster Walks.
  • Oral Papers (Clinical and Methodological).
  • Poster Walks- Roundtables – Welcome Reception.
  • Mentoring Opportunities – Networking.

Conference Instructional Objectives

Attendees will become familiar with:

  • Using patient-reported outcome measures (PROMs) for patient-centered value-based health care, from clinical trials and routine care to health system evaluation, performance measurement, and accountability.
  • Using PROMIS measures to address practical measurement problems in health-related research and clinical practice.
  • Using PROMIS measures to improve community, opportunity, and engagement across all patients in health-related research and clinical practice.
  • Using PROMIS measures to inform individual and population-based patient care, clinical quality improvements, enhance value in health systems, and to meet regulatory/payor requirements.
  • Applying implementation strategies to move PROMIS from research settings into clinical practice or health-system wide integration.
  • Benefitting from psychometrically developed measures, like PROMIS to inform individual and group level change scores and support rigorous outcome assessment.
  • Determining how PROMIS can be used for screening, symptom management and monitoring in rare and chronic diseases.
Program Chairs
  • David Bernstein, MD, PhD, MBA, MEI (USA).
  • Gemma Vilagut, PhD, MSc (Spain)
Early Registration is Open 
(The PHO Conference follows the ISOQOL Conference)

Data and Digital Health Systems Impact Assessment Survey

The Global Strategy on Digital Health Secretariat at the World Health Organization (WHO) invites professionals working in data and digital information systems for health to complete the Data and Digital Health Systems Impact Assessment Survey.

This rapid assessment aims to map and evaluate the effects of reduced financial and technical support to digital and data information systems to health systems, the health workforce, and patient populations, particularly in countries pursuing the Global Strategy on Digital Health.

Why This Matters

Recent shifts in donor priorities and funding reductions have placed critical digital health infrastructure, workforce capacity, and essential support systems at risk, affecting healthcare delivery in some of the world’s most vulnerable communities. Digital and data systems are foundational to health service delivery, decision-making, and patient care, and any disruption can have far-reaching consequences.

This brief, emergency survey is designed to capture the collective impact of these budget reductions on governments, development partners, civil society organizations, and others. The findings will help inform opportunities for a coordinated response through networks such as the Global Initiative on Digital Health to safeguard digital health systems and mitigate risks to data continuity, health services, and beneficiary populations.

Your Input is Critical

Your participation will help quantify the scale of impact and to inform urgent policy and funding discussions. WHO is committed to maintaining the confidentiality of all responses – data will be aggregated and anonymized to ensure privacy.

📢 Take the Survey Now: https://extranet.who.int/dataformv6/index.php/364635?lang=en

World Summit on the Information Society+20

The World Summit on the Information Society+20 High Level Event (WSIS+20) [1] will be taking place in Geneva, Switzerland, from 27 to 31 May 2024. Participation is free and open to all to attend, in person or virtually. The registration and accreditation processes are actually due to close tomorrow, Tuesday, April 23rd. The ITU registration portal can be found here [2].

WHO’s participation is in line with facilitation of the action line C7 on eHealth [3], which is co-facilitated by the International Telecommunications Union (ITU). As per WSIS+20 agenda, the WHO action line report will be presented on Friday, 31 May 2024, 10:00-10:45 CEST/UTC+2 in Innovate Space, at the ITU HQ.

Prior to the regular WSIS report on the C7 eHealth action line on Friday 31 May 2024, and as a WSIS related event, the Global Initiative on Digital Health [4] and partners will be hosting a two-day Multistakeholder Dialogue on National Digital Health Transformation at the ITU Towers on 28 and 29 May 2024. The theme of the dialogue will be Enabling Country-Led Digital Health Architecture. Additional information on the two-day event will follow soon and will also be available at Global Initiative on Digital Health (who.int) [4].

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